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Brian's Sorta Blog

Punch My Calves!

9/7/2020

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September is Restless Legs Syndrome (RLS, aka Willis-Eckbom Disease) awareness month. It’s horrific, misunderstood, incurable, and one of my two main brain diseases. 

I usually can inject light-heartedness into disease related creativity, but so far all I’ve got are the laments and anthemic lullaby below (from BrianAtPlay.com/Restless-Legs-Syndrome). Please let these experiences move you to learn more and treat RLS strugglers with compassion. #RLSAware #RLSAwareness

Stretching, kneading, pounding, pleading               
Crawling, burning, forcing, pressing  
Can’t say no can’t say no can’t say no can’t say no....

Always just beyond the edge of consciousness...like electricity. Toes. Ankles. Calves that have to move. Restless Legs Syndrome like a tailgater crowding my rearview mirror, a bully breathing down my neck, a whiff of something rotting just behind the wall. Always there. Always ready to twist a moment of peace and relaxation into a kicking, screaming fight to make the feeling leave.

Whether I’m down and dreaming,
or standing and screaming
I am always, always more
When sleep comes to stay,
or dancing’s the only way to survive
I will always be more
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  • Home
    • Brian's Story >
      • Brian in Plain Prose
      • 1Haiku
      • 2DustbowlNoir
      • 3StreamOfConsciouness
      • 4BrownWordle
      • 5ChicagoLimericks
      • 6ZaireJesterStory
      • 7FranceIdeologues
      • 8LosAngelesSchräg
      • 9Hagiography
      • 10HeavenSpokenWord
      • Brian Summarized
      • Narrative CV
  • Songs
    • Brian's Songs >
      • Always Toward Heaven
      • Home in Your Eyes
      • Glimpse
      • Further Up
      • Eau de
      • The End
      • Waiting for Me
      • To Be Free
      • What Does It Matter?
      • All I Do Is For You
      • Elwyn & Marilyn
      • Liminal Lullabye
      • Lydia's Christmas Song
      • We're Not Alone
      • Your Beauty's In Christ
      • Our Garden
      • Melinda Meloo
      • Austin Schlemaustin
      • Lydia
      • Jacob Brian
      • Psaume 139
      • Put It In His Hands
      • This Day
      • Leaves
      • It's Not Me
      • HD Blues
      • A Ring and an Island
      • Always Toward Heaven
      • Perfect
    • Brian Singing Others' Songs
    • Lynelle's Eternal Dance
    • IziBongo
    • High Jinks
    • Lori Tapia >
      • The Places We've Been
    • GlenOak
    • Stan Hamm
    • Beth Hamm Elliot
    • Vintage Enns, Hamm, Schrag
  • Reflections
    • First Moments in Heaven
    • Spiritual Musings >
      • DoHardThings
      • Bolt
      • Shadows
      • SittingLikeMary
      • Worshipping at Home
      • Ex Creatio
      • A Better Joke
      • In the Storm
      • Brian's Creed
    • HD Journaling
    • Schräg
    • Being the Fool >
      • Vele
      • No where to hide
      • Tuning Wars
    • Academia
    • In Memoriam >
      • MarilynSchrag
      • Elwyn-Schrag >
        • EdnasCoda
        • Thanks Dad
      • EdBartlett
  • Material Creations
    • Anchor Beads
    • Butter Dish
    • Poem On Stand
    • Fridge List Pens
    • Poem Napkin Holder
    • Leather Bookmarks
    • Phone Holder
  • My Diseases
    • HD
    • Restless Legs Syndrome
  • Kingdom Arts
  • FAQ
  • Blog
  • Contact