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The Places We’ve Been

From Life to Death to Life

My sister, Lori, has Huntington’s Disease, with symptoms farther along than mine. On May 19, 2024, she had a massive cardiac arrest—not caused by HD, but a contributing factor to what happened. Her husband, Andrés gave her CPR, but she ended up without oxygen for over 10 minutes, meaning she was clinically dead. They hooked her up to machines and used IV’s to keep her body functions going, but she had no organized brain activity. They said they could maintain her that way for 14 days.  Given this deadline, Andrés was planning to have her taken off the machines with hopes and prayers she would be able to breathe on her own, yet fully aware of the doctors' dim prognosis she would be able to survive. But he waited for their daughter to arrive from her home in Italy. We prayed that God would take Lori quickly.
     Marisela arrived on day 3.  She was adamant that they needed to go the full 14 days.  She said we needed to be praying for a miracle. We started praying for God to do something dramatic, anything!  
     On day 12 God did something dramatic: Lori woke up.  She began breathing on her own.  She tried to talk.  She opened her eyes.  She could obey some simple commands.  13 weeks later she was walking, recognizing people most of the time, and feeding herself. 
She was dead and now she’s alive!

Totally Unexpected Performance with Her Three Siblings

Eventually, Lori was moved to a memory care unit, where she was making slow progress.  In March 2025, Lynelle, Brad, and I travelled to Highland Park (north of Chicago) to visit with her. To our surprise, she recognized us, smiled, and when we asked if she wanted to sing a song with us around the piano in foyer, she said, “Yes!” We had low expectations for what would happen, so were floored when she joined our sibling quartet, singing a song she had written for the family in 1991. She remembered almost everything, and sang on pitch, telling us to do things better. Wow!

Brad, Lynelle, and I were truly flabbergasted, experiencing deep emotional healing...and maybe, Lori? 
​

Some Youtube Videos of “The Places We’ve Been"

Lori & Lynelle singing whole song, Kansas, 2006
An edited, shortened version of the song, March 2025
An unedited version of the whole song, March 2025
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  • Home
    • Brian's Story >
      • Brian in Plain Prose
      • 1Haiku
      • 2DustbowlNoir
      • 3StreamOfConsciouness
      • 4BrownWordle
      • 5ChicagoLimericks
      • 6ZaireJesterStory
      • 7FranceIdeologues
      • 8LosAngelesSchräg
      • 9Hagiography
      • 10HeavenSpokenWord
      • Brian Summarized
      • Narrative CV
  • Songs
    • Brian's Songs >
      • Always Toward Heaven
      • Home in Your Eyes
      • Glimpse
      • Further Up
      • Eau de
      • The End
      • Waiting for Me
      • To Be Free
      • What Does It Matter?
      • All I Do Is For You
      • Elwyn & Marilyn
      • Liminal Lullabye
      • Lydia's Christmas Song
      • We're Not Alone
      • Your Beauty's In Christ
      • Our Garden
      • Melinda Meloo
      • Austin Schlemaustin
      • Lydia
      • Jacob Brian
      • Psaume 139
      • Put It In His Hands
      • This Day
      • Leaves
      • It's Not Me
      • HD Blues
      • Always Toward Heaven
      • Perfect
    • Brian Singing Others' Songs
    • Lynelle's Eternal Dance
    • IziBongo
    • High Jinks
    • Lori Tapia >
      • Studio Recordings
      • The Places We've Been
    • GlenOak
    • Stan Hamm
    • Beth Hamm Elliot
    • Vintage Enns, Hamm, Schrag
  • Reflections
    • First Moments in Heaven >
      • Memories
    • Spiritual Musings >
      • DoHardThings
      • Bolt
      • Shadows
      • SittingLikeMary
      • Worshipping at Home
      • Ex Creatio
      • A Better Joke
      • In the Storm
      • Brian's Creed
    • HD Journaling
    • Schräg
    • Being the Fool >
      • Vele
      • No where to hide
      • Tuning Wars
    • Academia
    • In Memoriam >
      • MarilynSchrag
      • Elwyn-Schrag >
        • EdnasCoda
        • Thanks Dad
      • EdBartlett
  • Material Creations
    • Anchor Beads
    • Butter Dish
    • Poem On Stand
    • Fridge List Pens
    • Poem Napkin Holder
    • Leather Bookmarks
    • Phone Holder
  • My Diseases
    • HD
    • Restless Legs Syndrome
  • Kingdom Arts
  • FAQ
  • Blog
  • Contact