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Huntington's Disease (HD)

HD is a degenerative neurological hereditary disorder caused by a faulty gene for a protein called huntingtin. I have this faulty gene and thus a 100% chance of experiencing HD's symptoms - depression, anxiety, cognitive difficulties, and the uncoordinated movements typical of HD (unless, of course, God heals me or I die of something else first). Learn more about HD at this link.
        I'm working on a few projects related to HD communities. 

New Resource Available!

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​​
​“I've reviewed the card deck and LOVED it!” 

Cheryl Lenheiser, LCSW, Licensed Clinical Social Worker
HDSA, South Central Region




Press Here to Purchase on Etsy
Press Here to Learn More

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Click Here

Discovering Death

Some entries from my personal journal around the time I found out I have the HD mutation.
Click Here

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click here

HD and Expressive Arts Therapies

This is an article I wrote for the online music therapy journal, Voices. 
Click here
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  • Home
    • Brian's Story >
      • Brian in Plain Prose
      • 1Haiku
      • 2DustbowlNoir
      • 3StreamOfConsciouness
      • 4BrownWordle
      • 5ChicagoLimericks
      • 6ZaireJesterStory
      • 7FranceIdeologues
      • 8LosAngelesSchräg
      • 9Hagiography
      • 10HeavenSpokenWord
      • Brian Summarized
      • Narrative CV
  • Songs
    • Brian's Songs >
      • Always Toward Heaven
      • Home in Your Eyes
      • Glimpse
      • Further Up
      • Eau de
      • The End
      • Waiting for Me
      • To Be Free
      • What Does It Matter?
      • All I Do Is For You
      • Elwyn & Marilyn
      • Liminal Lullabye
      • Lydia's Christmas Song
      • We're Not Alone
      • Your Beauty's In Christ
      • Our Garden
      • Melinda Meloo
      • Austin Schlemaustin
      • Lydia
      • Jacob Brian
      • Psaume 139
      • Put It In His Hands
      • This Day
      • Leaves
      • It's Not Me
      • HD Blues
      • A Ring and an Island
      • Always Toward Heaven
      • Perfect
    • Brian Singing Others' Songs
    • Lynelle's Eternal Dance
    • IziBongo
    • High Jinks
    • Lori Tapia >
      • The Places We've Been
    • GlenOak
    • Stan Hamm
    • Beth Hamm Elliot
    • Vintage Enns, Hamm, Schrag
  • Reflections
    • First Moments in Heaven
    • Spiritual Musings >
      • DoHardThings
      • Bolt
      • Shadows
      • SittingLikeMary
      • Worshipping at Home
      • Ex Creatio
      • A Better Joke
      • In the Storm
      • Brian's Creed
    • HD Journaling
    • Schräg
    • Being the Fool >
      • Vele
      • No where to hide
      • Tuning Wars
    • Academia
    • In Memoriam >
      • MarilynSchrag
      • Elwyn-Schrag >
        • EdnasCoda
        • Thanks Dad
      • EdBartlett
  • Material Creations
    • Anchor Beads
    • Butter Dish
    • Poem On Stand
    • Fridge List Pens
    • Poem Napkin Holder
    • Leather Bookmarks
    • Phone Holder
  • My Diseases
    • HD
    • Restless Legs Syndrome
  • Kingdom Arts
  • FAQ
  • Blog
  • Contact